Perspectives and experiences of caregivers enrolled in a paediatric HIV disclosure programme in the peri-urban township of Khayelitsha, Cape Town
South Africa has a low pediatric HIV disclosure rate, attributed to caregiver propensity to delay disclosure and a lack of institutional guidelines at health care facility level. Caregivers often cite lack of disclosure skills, concern for children’s psychological well-being after disclosure and fear children might inadvertently disclose to others as barriers to early disclosure. Moreover, at a structural level, health care facilities lack resources needed to adequately facilitate the process of disclosure. In 2015, a caregiver-led disclosure programme was developed and implemented in a peri-urban township in Cape Town. The programme utilises two illustrated disclosure books as tools for change and seeks to move disclosure from the health care facility to the community.
To understand the perspectives and experiences of caregivers who received the disclosure booklets, and to explore what role social and cultural factors play in shaping acceptability of initiating pediatric HIV disclosure.
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